A warriors Battle

Monday, July 25, 2011

Situation Report #9

Let me just start by saying that Stanford doctors, who wrote the book on this rare blood cancer, met this morning and have stated that they are doing something never tried before due to the fact that they have never seen this situation before. They are literally....

Going. Where. No. Man. Has. Gone. Before.

We have A plan which is better then this past weekend which was NO plan

The IVIG has WORKED! If you were praying for platelets, they have arrived. We went from numerous blood transfusions with no movement to going from 4,000 to 12,000.
WELL HELLO THERE BEAUTIFUL! PLEASE STICK AROUND.

Us: "YEAH! 12,000."
Doctor: "That is ridiculously low. I guess it's all relative." **eye roll**
Us: "Hey, we'll take it."

So they DID the bone marrow biopsy this morning. Dad survived it! Stanford and Santa Cruz have the test and should get back to us tomorrow. How much cancer is in the bones? That I should have for you tomorrow and THAT will determine the CHOP (chemotherapy) treatment plan. Finally that last staging piece we needed from Sit Rep #1. WE NEED THOSE PLATELETS TO STAY PUT TO START CHEMO! Of course not to many because of the blood clot in the lungs....right.

Honestly, It just feels good to all of us that we are not just sitting around waiting for nothing. We know that making a move means that trouble may find us. If you know this family then I don't have to tell you we are movers. We would rather charge forward with the best support staff possible knowing we are in harms way then sit back in fear.

No regrets! Just Jump.

That reminds me of when dad went to Army jump school at the ripe ole age of 41, a good 20 years older then the next guy. He was taking the job of Marine Corp liaison to the 18th Airborne Corp. He was injured in the first week. He REFUSED to quit as much as they tried to get him to. Even though he always said "Marine's arn't supposed to jump out of airplanes. We float on the water." So dad it's time to jump one last time. Be ready to PLF your ass off. In my dads words....

YEAHH HOOOOOT EEEEEEEE!


P.S. Mathew is in the air on the final leg from Afghanistan. He left there with no change of clothes. He had already been in his gear 5 days. Some friendly human being GAVE him clothes to change into somewhere in Kyrgyzstan or possibly the stop in Turkey. Thank you whoever you are from us and every person on the flights home.

25 comments:

  1. Go, Ed, Go! It's all good let's keep it going, my friend!
    OUT.
    Dudikoff

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  2. Wow. So much info -- and we're so stoked! Serve up more platelets, please, but stay away from that clot. And we were wondering about Mathew - incredible he hadn't even brought anything else to wear! What a kind human to give him some clothes. Love that. Hugs from SoCal. Chris & Bender

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  3. Ana...no worries. It's gonna take more than this to kick your Dad's ass. In fact, I'm afraid FOR the cancer. It picked the wrong guy/family this time. If there is a picture beside the definition of family in the dictionary, it is yours... Love and prayers and.....OoooooooRahhhhhhhh Devil Dog. Kick that cancer straight back to Hell!!!!!!!....<3 you.....McCune

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  4. Platelets, Platelets, Platelets, Hercules, Hercules, Hercules........

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  5. We love you Ed...We are in our hearts everything
    waking moment. We are sending energy that will circle you and get more platelets.
    We love you

    Bobbie and Francisco

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  6. The platelet prayers are working!! He is up to 33,000. That IVIG therapy is worth its weight in gold. Now we need to start wishing away the blood clot.

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  7. WOOHOO!!!!! Great news Analicia!!!

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  8. Yay for good news! I have a feeling everything is going to be ok. Too many prayers and you guys are way too strong. Stay positive and those doctors will eventually learn :) Love you! Lindsay

    p.s. This is the first time I've figured out how to leave a comment. Yikes!

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  9. @ Heather. Platelets up to 33,000! Up from 4,000 is huge. Granted that is still low, but now some serious chemo options can be considered. We'll take it. Keep fighting Ed, and keep up the good work IVIG.

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  10. Great news. Keep going, Ed.
    Here's a big hug, Mary.

    Much love,
    Chris Sue and Michael

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  11. I'm so glad that things are looking up!!! If anyone is going to beat this, it's Ed!! And I'm delighted to be able to keep up with the news. Thanks Heather and Analicia for setting this up. hang in there, guys!

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  12. Great news! Keep fighting!!! Sending postitive thoughts and more platelet prayers. Much love, Jana

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  13. P.U.S.H. = Pray Until Something Happens!! This is proof that prayers work! Thank you Lord for helping our Uncle Ed and giving wisdom to these doctors. Continue P.U.S.H.ing everyone!!!
    Love you Lesnowicz family :-) xoxoxox

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  14. I'm so sorry to hear of your illness, Ed. With your good health history you must fell like you've been transported to an alien world. My last job before retiring was 2 years in a cancer clinic. We saw lots of non-Hodgkins patients. It was wonderful to have them come back after chemo with smiles on their faces. It's a tough road. Your advantage is that past experiences have shown you how to push yourself to the limit. Plus you have Mary and your supportive family to push you further. To me you'll always be the nut that carried me (with floor length gown on) over your shoulder to the Marine Corps Ball dance floor. With the kind of daring attitude you have the odds stacked on your side! Best wishes, Nettie

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  15. Welcome Home, Mathew!!!
    So thankful you made it back safe and sound.
    You are one GREAT dose of good medicine for your Dad and family right now!!!
    Gods timing is always perfect!!!
    Love you all.

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  16. Ed,
    Our thoughts and prayers are with you and your family and this fight. I am thrilled to read today's post and see that platelets are up!!! May you keep the faith and know that you are loved. The Gandrups :)

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  17. 1. welcome home, matthew.
    2. awesome news on the platelets.
    3. think you two should start ordering more platelets up to the front lines.

    bender

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  18. Our thoughts & prayers are with you all. Ed, Randy is saluting you with a single malt & a cigar. Keep it going, Mr.!

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  19. EJ ~ just did the math...5,937 days, and counting :) since stage 4 dx. You can do this!

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  20. Carmen Rocha NewbryJuly 27, 2011 at 5:27 PM

    Ed & Family, I have been following your blog and my heart goes out to all of you, especially you Ed. It's great to hear your platlets are up and on the road to treatment!!! You don't know me but I might have met you at one time when I was young with my brother John. We are Joe Rocha's kids. My brother passed away 3 yrs ago in October at the young age of 47. I look forward to seeing you all in person. You have lots of love, prayers and support coming your way from all over and I just wanted you to know we are thinking and praying for you everyday! Keep up the wonderful positive attitude and sense of humor, it's the best medicine. Love You All, Carmen Rocha Newbry & Family.

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  21. Ed,

    My stomach dropped when I read the diagnosis, but my heart has definitely lifted after reading the blog and latest sitrep. You look amazing in that picture taken in the hospital. I don't know anyone else with the tenacity and fight in them that you have, so I know, without a doubt, that the AITL has a formidable opponent!! You are in our thoughts and prayers, daily. Not only for your ability to fight this, but for you and your family to embrace the good in every moment spent together, despite the difficulty of the journey.

    Semper Fi,
    Mary McDonald

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  22. Ed - Keep up the fight! We need you back here in the office. There's work to do, trips to go on, rugs to buy, and liberals to annoy... We can't do it all without you.
    Alan

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  23. Ed,
    miss you stealing coffee mugs! keeping you in my prayers and will go give more blood. looks like you are in good hands.
    sincerely,
    Janet Borchardt

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  24. Hey Ed here I go first time bloger, Hang in there if any body can beat this you can you are one tough hombre,you are in our thoughts and prayers, besides we have some streams to fish and some big fish to catch you can count on that. reflecting back as a 12 year old boy at the Rio Dell baseball field you lifted my spirts and I will never forget that feeling and energy,now I am sending that energy back to you take that and hit me a home run, see you soon,hi matt glad to hear that you are back home with us.

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