A warriors Battle

Thursday, September 1, 2011

Situation Report #14


Hi All...Heather here :-) I feel the need to preface this update with my name so you will all understand why this update will not be filled with pictures, stories and witty comments...just the facts man. I went to the Stanford appointment with dad and mom yesterday, so I have been tasked on this update.

Overall it was good news. The doctor had a shit eating grin on her face when she told us that ALL of dads lymph nodes have shrunk to under a size they would consider abnormal. His spleen has also reduced in size. Basically dad has already beaten the odds in that 30-40% of patients do not respond to Chemo. He is responding and not feeling to bad to boot. The chemo is CHOP-E, the E is another component they have taken from a German study and they are pleased with the outcome. He will not be entering into a clinical trial through Stanford. They have one starting in a month that they would consider him for but the timing is not right. Dr. Advani feels like the plan they have in place is his best option.

Here is the plan of attack:
He will have four more chemo treatments for a total of six. The chemo treatments should be completed by the beginning of November. In the meantime Dad will be meeting with the Bone Marrow transplant doctors. They want to be up and at'em right when the chemo is completed so he can start the transplant. The transplant will be of his own stem cells which is good news. We thought he may need a donor which can be a challenge to find. We will have more info on the transplant after we have that appointment but they did say he will be hospitalized for 7-10 days during the procedure of taking out the bone marrow. The replacement of the stem cells can be an outpatient appointment. That too is good news as we thought he would be hospitalized at Stanford for the entire time.

We are told that without the transplant he has a 33% chance of survival but with the transplant it increases to 66%. We like those odds much better and in fact are the best odds we have heard to date! So dad left the appointment with a smile on his face and hopped in the truck with Mom to spend the next week up at the cabin before his next treatment.

So those are the facts and I'm sure Analicia will come in here and edit something or put in a picture because she won't be able to stand it!! have at it girl.


OK-Picture added by demand of Bonnie. She's the picture person! I couldn't pass up the opportunity to post this great picture of dad from 1976. Thanks Bonnie.

21 comments:

  1. Heather,
    Thanks for the update. Superb news.
    Love,
    Luciano

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  2. I wouldn't touch a thing. Seriously, you could of just said 66%...HALLA! Best news yet and for the first time I feel like we are on a solid plan. I only put up pictures and babble because half the time we haven't had a solid thing to say. The real question is, did you wear your mouse ears while reporting the news? I had kinda promised that. Well done sista!

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  3. Lesnowicz Family,
    Thank you for the update.
    Your extended NPS family is in your corner.
    Warmest regards and best wishes.

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  4. GREAT NEWS! but a bit bland Heather:):) Needs a photo, so I'm sending one of EJ in an old straw hat, playing the guitar at San Onofre Beach.... and issuing a call for more pictures of 'ED IN A HAT'. There must be thousands out there!

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  5. Thanks Bonnie! The greatest thing about this picture is every time we would move dad would slowly molt into the locals but with at least a 3-4 month window of environmental confusion. That's a beach chair dad, not a horse.

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  6. WONDERFUL, POSITIVE NEWS, Heather! So glad your Mom and Dad are at the cabin to relax and take a much needed break. So far, it looks like your Dad is beating some tough odds!! YAY!!!! (Prayers have a way of taking care of that, uh huh!=)
    Please give them our love and they know the prayers will keep on going from up here.
    Thanks for updating.
    ~Love you all~

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  7. Much hearty congrats for good news....hang tough...my prayers. you are a very special man who has a very special family...Hugs Kathleen

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  8. Wonderful news Heather, how great that your parents were able to go to the cabin, your dad of course wearing his Wanna Be hat.
    -love to all of you-
    Lisa and family

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  9. Thinking of you Uncle Ed and Auntie~ Hope your week at the cabin was relaxing and refreshed your souls for a long while. Keeping the prayers going here for you guys. Just know you are ALWAYS in our hearts and on our minds with good, good positive thoughts. We LOVE you SO much!!!!!!

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  10. Hi Ed! :-) So glad to hear that you are doing well! I know 'followership' is not your strong suit, but it is kind of you to try. Glad you are having some relaxing days at the cabin. Just wanted to let you know I was thinking of you. Hang in there! :-) E

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  11. Hi folks. My name's Dan Zappa and I met Ed at NPS in 2008. I had a meeting this past week with Col Steve Fisher, USMC (ret) who informed me about this site and Ed's condition. Your posts are very informative and colorful, and I plan to continue to check back for news. Please know I'm praying for you. Semper fidelis

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  12. Sweet news, you guys! Sixty-six percent is excellent. Thanks for the update, Heather. We hope you continue to feel well, mister. Lots of love to you from the East Coast. Hope to see u again real soon. Love, Chris & Bender

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  13. ...just me, Uncle Ed, stopping by the blog to say, "Hi!", and that I'm thinking of you and keeping the prayers going. I hope you are feeling better today.
    Big Humboldt Hugs sent your way.
    Love you~

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  14. Hi Ed....Miss you...Glad the right numbers are rising...Thinking of you..Hope you are feeling better....LOVE and HUGS! Kathleen

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  15. We're thinking of you every day, Ed, and hoping your treatments are going well. We miss you, Mary and the family.

    Love to all,
    Chris, Sue and Mike

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  16. Got this link from Erik - of MARFOREUR family. I will keep the entire family in my prayers. If anyone can kick the S--t out of this it is you, Ed.

    God bless.

    Semper fi,
    Leah

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  17. Cabin? SCHMABIN, get back to work! If you haven't completed at least half you memoir yet, you are slacking off...

    Here I was thinking about getting stuck in the marrow for a test. Glad you own cells can work. Good odds on this working,eh? You deserve another jackpot on this one. My money is on you. Semper Fi, Mate.

    Dick&Nettie

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  18. good news ,gotta check this more often . our prayers are with you.

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  19. Sir, Get healthy. It has been a honor to serve with you. Great DESFIREX memories. Wishing you and the family all the best.

    S/F
    Dave Lucas R 5/11

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  20. Ed, No keeping the Great Fast Eddie down for long!!! Too tough for that!! Wanted to pass on all the best wishes from Jim Lasswell, Vince Goulding, General Mel Spiese and myself. Your name comes up in favorable dispatch frequently and with great reverence!! Semper Fi, Steve

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  21. Colonel Ed, Coming up on the 237th Birthday of our Corps, and naturally your illustrious record and name are a subject of discussion when we speak of the legends of our Corps. Of course, Irish Egan and I send our heartfelt (manly) hug to you!! We will be standing by for the latest update. Semper Fi, Steve

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