A warriors Battle

Monday, January 9, 2012

Situation Report #18

We promised to update you today with the news.  The good, the bad and the ugly.  Remember when Voldemort seemed powerless forever but still had a spark or Arnie came back from the Terminator with only a twitch of the finger left at the end of the movie.  Heck he rose up in a couple more movies and even had the energy to be the Govenator...



YES, I am finding the way to tell you something even many of the doctors at Stanford didn't believe.  Dads cancer was in remission the first week of December and then by the end of the month was back stronger than ever.  We have been just sitting around for the last few days trying to wrap our minds around this news and of course waiting for Oncology office hours to open today.

 A weekend of all of us roaming around the house feeling down and not knowing what the doctors will say come Monday.  Will they tell us, "Sorry, go home my friends?"  Yesterday we sat watching the Broncos/ Stellers game, trying to get our minds away from our recent news. The family team wasn't looking to win.  Of course when the game went into overtime the inevitable "Tebow God" conversation started.

Dad: "Well, it looks like God watched over Tebow again."
Me: "Dad.  I surely hope that GOD has way better things to do than rig football games."
Mom: "Maybe God has chosen to show himself this way."
Me: "Whatever." **eye roll**
Dad: "You never know I guess."

Moments later the OT starts.  Tebow throws the ball to Taylor and he goes.....ALL...THE...WAY!!  80 YARDS for the touchdown.  Mom jumps out of her chair and runs over to dad.  He is yelling "WE WON WE WON".  They are hugging, everyone is out of their seats high fiving.  Minutes later dad is on the phone with Mathew doing the traditional play by play.  Everyone is all smiles in that moment.  A moment we all needed and prayed for.  Maybe God does rig a game or two.  What's the harm.

ONCOLOGY IS OPEN TODAY AND WE HAVE A NEW PLAN B


So, as we speak dad is BACK in the KIMO chair.  He is going to have two rounds of kimo but a new regime.  Gemcitabine and Oxaliplatin.  Say that three times fast.  We are not sure yet if the next and final round will be in two weeks or three weeks.  What we do know is AS SOON AS that round is over dad will go straight to the STEM CELL TRANSPLANT at Stanford using those cells that were harvested a few weeks ago.  The new piece is the possibility of  a   Mini Allogeneic Stem Cell Transplant  after the first transplant.  I guess the idea is to "tie him over" until he can get matched with a stem cell donor.

Are you confused yet?  We are just along for the ride ourselves.  Welcome to the boat, grab a paddle.


We have dug out a positive a doctor said today.  Upside, dads cells are fast growing.  Hence the cancer in a few weeks thing BUT also they can get the good guys to grow fast too.  He responded REALLY well to the first 6 rounds of kimo.  Now, we hit it again and then be ready to transplant immediately.


Chin up folks.  Chin up.

27 comments:

  1. Ana, I do believe that God is in control and does things for reasons we can't possibly understand. That said, your dad will not be dying anytime soon. I had a talk with God due to the recent string of tragic events in my own family (especially the latest), and I literally BEGGED Him for mercy. This death and sickness has to stop. Therefore, if I have to put my out of shape thirty seven year old ass in a cheerleading outfit, get on a plane and bring Tim Tebow's blessed behind to Santa Cruz and camp out with your Dad, HE WILL NOT DIE. One of two things WILL happen. Either the sight of this aging body in a cheerleading suit will scare the cancer away (and everyone else as well), or we will "nicely" ask Tim to lay his hands on your Dad or kneel Tebow style until he's cured (I will go get him, wrap him up and deliver him to your dad wrapped in a bow the way Uncle Eddie delivered Clark W. Griswold's boss to him in National Lampoon's Christmas Vacation...if need be)...;-) Chin up and know that I am on the East Coast where we go a little crazy during these long winters...look at me, already plotting my insanity plea...HAHA;-)
    XOXOXOXO and more prayers than you can count...Jen McCune/McCulloch

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  2. Perhaps I should post a disclaimer that I do not really intend to kidnap Tebow...but I am not beyond hounding his publicists;-)
    JMc

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  3. Another day, another fight.

    Let´s pick up those prayers and KEEP MOVING FORWARD.

    Love,

    Luciano

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  4. Hey Sir,

    As always, Victoria and I have you in our prayers. Semper Fi, Al Matthews

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  5. Dear Team Lesnowicz,

    The Sullivan's are with you and thinking of you every step of the way. So sorry to hear about the set back; but we know it's temporary and the fast growing good cells will win out. Keep the faith and stay strong.

    Much love,

    Chris, Susan and Michael

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  6. You are always in my thoughts and prayers, the combined energy of all your family and friends will help you jump this new hurdle.

    We love you,
    -Lisa

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  7. Loving all yawl, always.

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  8. We are thinking of you often in San Diego, sending our Santa Cruz-Trescony St Forever love your way!

    Hugs,
    Sara and Cory

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  9. Chong-Suk and Steve RobinsonJanuary 18, 2012 at 9:23 AM

    Well, this is a setback but it's heartening that the response to chemo was strong. We hope the next round of chemo will get that stuff back in its cage so the stem cells can do their thing!

    Our best thoughts from Wisconsin,

    Chong-Suk and Steve

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  10. Our family prays everyday for you and your family. Sending positive energy your way. Take care!

    Love you!
    Aunt Sera, Emily and the rest of the Rocha gang

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  11. Tonight is the first new moon, after the first full moon, after the winter solstice......... The Chinese Year of the Dragon AND the Dragon Slayer! That's you EJ!

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  12. Chief and Family...just a note to stop by and say hello and that my thoughts and prayers are with you!!!

    Keep thinking positive thoughts and know that you don't have to win every battle to win the war!!!!

    Semper Fi,
    Shannon Geaney

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  13. Colonel Ed,

    Rebekah and I just heard about your condition today. May God give you the strength and courage to persevere and your family the peace that comes from the knowledge that He is in control. We miss you and will keep you in our prayers.

    Semper Fidelis,

    Matthew Bain

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  14. I started reading from day one and got to about post 10, but wanted to catch up on the latest before going to bed. There are no words really, but I am and always have been an optimist. I have big faith! Ed and your entire family will be in my thoughts and prayers daily! That is a promise! Thank you for this beautiful Blog! I wish I had done this for my mom when she was going through something similar. Remission now for 15 years though :)

    Blessings to you all!
    Rebekah Bain

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  15. You are one of a kind Ed. Show them how this works when they have a fighter on their hands. My best to you and Mary and family.
    My prayers are with you my friend.
    Guy

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  16. Maggie T& family :-)January 27, 2012 at 5:15 PM

    I haven't stopped by the "Blog" in a while, BUT....that doesn't mean the prayers stop. NO WAY!!! They are said, "E V E R Y D A Y!!!!
    Thinking of you, Uncle Ed, Auntie and everyone.
    (Uncle Ed...found this poem for you. I know your tackle box is always ready to go for the cabin. Stay the course!!! There are BIG fish to fry!
    Love you all!

    Trout Fishing
    by Eunice B Lamberton

    Give me a rod of the split bamboo,
    a rainy day and a fly or two,
    a mountain stream where the eddies play, (is this not a perfect line)
    and mists hang low o'er the winding way,

    Give me a haunt by the furling brook,
    A hidden spot in a mossy nook,
    No sound save hum of the drowsy bee,
    or lone bird's tap on the hollow tree.

    The world may roll with it's busy throng,
    And phantom scenes on it's way along,
    It's stocks may rise, or it's stocks may fall,
    Ah! What care I for it's baubles all?

    I cast my fly o'er the troubled rill,
    Luring the beauties by magic skill,
    With mind at rest and a heart at ease,
    And drink delight at the balmy breeze.

    A lusty trout to my glad surprise,
    Speckled and bright on the crest arise,
    Then splash and plunge in a dazzling whirl,
    Hope springs anew as the wavelets curl.

    Gracefully swinging from left to right,
    Action so gentle- motion so slight,.
    Tempting, enticing, on craft intent,
    Till yielding tip by the game is bent

    Drawing in slowly, then letting go
    Under the ripples where mosses grow
    Doubting my fortune, lost in a dream,
    Blessing the land of forest and stream.

    (Royalty Free)

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  17. Ed, I'm praying for you and Mary and the entire family. You are much loved, my friend. Hope to see you soon.

    Hang in there,

    Bob

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  18. Your wellness is at the top of our priority prayer list. Keep at it, Ed (and fam).
    We love you. xo, the Dudikoffs.

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  19. Keeping you in my thoughts and prayers Sir.

    -Dre

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  20. Uncle Ed and family! My heart goes out to all of you. I think of you often and pray at the oddest times, as you pop into my head. I could be sitting at my desk, at work...and go.....oh wait! I gotta pray for Uncle Ed. Keep on fighting Uncle.........what am I saying? Like you don't know how to do that..............duh!

    Love you all and Congratulations on your beautiful grandchild!!!!!
    Love, Madalena and Rod

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  21. Ed, you taught me that nothing is impossible even in Egypt...St Barbara has your back, We pray for your recovery daily. Tom, Annie, Michaela, and Jack Connally

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  22. Happy Valentine's Day to the most romantic couple I have ever known! Loads of love to all yawl, Bonnie

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  23. Checking in.
    Prayers continue! ALWAYS!!!!!
    Love you, Uncle Ed!!!!! Auntie and family!!!!!
    I know God is there at every turn and pause.
    His Love and timing is: PERFECTION!!!!

    xoxox to all of you.

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  24. Ed,

    We're thinking of you every day. Stay strong and keep the faith.

    Love,
    Chris, Sue and Mike

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  25. Hugs, prayers and hoping all is well! :-) E

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  26. Thinking of you Ed and praying for your strength and courage. Our thoughts and prayers are with you and the family. Love, The Gandrups

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  27. taking that LEAP OF FAITH in your honor on Leap Day. Loving you always and forever, xoxbon

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